This morning, I stumbled upon something important. KALW's "Your Call" program hosted by Rose Aguilar featured an interview with Dr. VJ Periyakoil about the Stanford Letter Project, an initiative that provides templates to help people communicate their end-of-life wishes to loved ones and healthcare providers.
The conversation was both powerful and practical. Dr. Periyakoil explained how these structured letter templates help people express who matters most to them, what they value, and their healthcare preferences in a way that's accessible across cultural and language barriers. Rose Aguilar shared her own experience with her father's quick passing from pancreatic cancer, highlighting how these conversations are often postponed until it's too late.
As I explored the Stanford Letter Project website (https://med.stanford.edu/letter), I was excited to see they offered templates in multiple languages including Chinese, which would be particularly useful for my family. However, I quickly hit a roadblock: the links to these multilingual resources were broken.
Rather than just moving on, I spent this morning doing what I could to help. I crafted an email to both Dr. Periyakoil and the "Your Call" team, explaining the broken links and how I'd found archived versions on Archive.org that showed what should be there. To my surprise, I was quickly cc'd on an email from Dr. Periyakoil to her assistant requesting the links be fixed. Fingers crossed this small intervention helps make these valuable resources accessible again.
I've also been spreading the word through various channels:
- Sharing the episode on social media (Facebook, X.com, and Bsky)
- Bringing the idea to my fellow Ashby Village Tech Committee volunteers
- Considering organizing a workshop around these letters, possibly connecting it to National Healthcare Decisions Day on April 16
There's something deeply satisfying about these small acts of digital maintenance and community connection. The web is full of broken links and forgotten resources, but tools like Archive.org help us recover what's been lost. Similarly, end-of-life conversations are often overlooked until crisis strikes, but resources like the Stanford Letter Project provide a structure to recover those essential connections before it's too late.
I may be a proud Cal Bear, but I can certainly appreciate this valuable Stanford initiative. Some things transcend rivalries, and helping families have meaningful conversations about what matters most is certainly one of them.
Has anyone else used letter-writing or structured templates to facilitate difficult family conversations? I'd love to hear your experiences.